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Episode Details
Joining as today’s guest is Patti Demuri, Rare Disease Patient Advocate & Educator
In this episode, we discussed:
- Demuri’s background and her path to becoming a Rare Disease Patient Advocate
- What makes rare disease patients unique in how they interact with healthcare & clinicians.
- The concept of medical trauma
- How Telehealth can benefit rare disease patients
To learn more about Patti Demuri please use the links below:
